Archive for the ‘Kafi Grigsby’ Category

Patient Posts Around the Web

Kafi Grigsby
Wednesday, October 6th, 2010

 Kafi GrigsbyA collection of patient voices from around the web this week:

Regina Holliday is an artist, the widow of a cancer patient, and advocate for the integration of health information technology.   In her October 4th blog, she talks about a painting she’s created at the request of e-Patients Connections’ Kevin Kruse. The painting which illustrates the marriage of virtual communities like CaringBridge and Facebook is intended to convey the power of online social networks to support patients and caregivers during a time of medical crises.  Regina’s painting will be auctioned and its proceeds donated to her son’s school.  See the paintings and read her post here:  http://tinyurl.com/25bsyr7

About.com: Patient Empowerment blogger, Trish Torrey, encourages patients to speak up and take an advocate to doctors’ appointments.  In her blog, Doctors Find Confession Is Good for the Soul – and Safety, Trisha reminds us that doctors make mistakes and some can be fatal.   Trisha sites examples of physician errors quoted in a recent edition of Reader’s Digest.  Here’s her blog: http://tinyurl.com/2g7orbq

After 6 years of blogging on Diabetes Mine, Amy Tenderich, answers personal questions about her own experiences living with diabetes, her preferences for care and proudest accomplishments on behalf of people living with diabetes.  Amy is most gratified by her annual DiabetesMine Design Challenge, a national campaign to encourage the development of new, portable, easy to use diabetic medical devices.

Obama and My Uncle Johnny

Kafi Grigsby
Friday, July 2nd, 2010

Kafi GrigsbyI was home relaxing when I received a call from Uncle Johnny.    When I saw on the Caller-ID that it was him, I braced myself.  Calls with my Uncle Johnny were never brief, by nature he was loud so I had to yell too, and his conversations always involved more than a few swear words.  My uncle has been described as a “gun… not a pistol, but a gun!”

“Hey!  Uncle Johnny!  What’s up?” as I prepared myself for one of his unusual requests.

He began loudly, “Kafi!   I’m thinkin’ I need you to write a letter for me to Obama!  I don’t think he knows what’s going on here with this health care thing, and I just thought I need to tell him.” 

I was intrigued.  I asked “What’s going on that you want me to tell the President about?   What do you think he needs to know?”

“Well, I know he has this thing about electronic medical records.” My uncle explained.  I was impressed; Uncle Johnny knew about EMRs!  “But they don’t work!  A week ago I went to the hospital, see, to have my blood work done.  Then, today I went back to my doctor who works upstairs for a follow up.  He was supposed to read the lab results and tell me what’s wrong but he didn’t have the results!  That doesn’t make any sense!  I mean, he has the computer right there.  He can see that I went to the lab, but he can’t see the results!  What the hell does he have the computer for then if he can’t see the results?  So now, I got to make another appointment to go back to that doctor after I get the lab results from the hospital!  It was a total waste of time!”

Instantly, I understood what my uncle had encountered.   The doctor should have told him that it was my uncle’s job to bring his lab results with him to his follow-up appointment or to call first to make sure the lab had sent them on.  Uncle Johnny wrongly assumed that because his doctor’s office was in the hospital where his blood was drawn, and both had computerized records, the doctor would be able to see is lab results on his computer. 

I explained to my uncle that what he faced was the same thing that many of us have faced: there’s a lot on us as patients that we don’t realize and we’re not told about.  Before we get to expensive — but helpful — electronic medical records, physicians can afford to implement a basic guide to their practices that makes clear the expectations they have for their patients, and what patients can expect from them.  There are other resources, including learning how to ask for medical records and test results, and creating online personal health records, that can help patients keep track of their information themselves.

In the end, we decided not to write a letter to President Obama, but we wrote one heck of a letter to his doctor!