Through blogs and comments, patients and experts explore what it takes to find good health care and make the most of it.
Advice Urges Wider Sharing of Heart Care Decisions
Jessie Gruman | May 16, 2012
This article was written by Associated Press writer, Marilynn Marchione, and appeared on the USAToday website.
' Too often, patients with advanced heart failure don't realize what they are getting into when they agree to a treatment, and doctors assume they want everything possible done to keep them alive, says the new advice, published Monday by the American Heart Association and endorsed by other medical groups.
It calls for shared decision making when patients face a chronic condition that often proves fatal and they need to figure out what they really want for their remaining days'The goal is "not only living long, it's living well. People often make decisions about the 'long' without even considering the 'well,'" said Jessie Gruman, president of the Center for Advancing Health, a patient advocacy group. The heart association asked Gruman, who has had several cancers and a heart problem, to review the advice from a patient's perspective.
The worst thing is to have no plan or clear goals when an emergency occurs, she said.
"The person who's ill may not have particular cognitive clarity and the caregivers may be upset and exhausted. They just haven't thought it through ' they haven't had a chance to think it through. They've never done this before," Gruman said.
Read the rest of this article at USAToday.
More Blog Posts by Jessie Gruman
Jessie C. Gruman, PhD is president and founder of the Center for Advancing Health. Her experiences as a patient — having been diagnosed with five life threatening illnesses — informs her perspective as an author, advocate, and lead contributor to the Prepared Patient Forum blog. Her most recent book, AfterShock, helps patients navigate their way through the health care system following a serious or life-threatening diagnosis. You can follow her on Twitter @JessieGruman. | More about Jessie Gruman
Comments on this post
Please note: CFAH reserves the right to moderate all comments posted to the Prepared Patient Blog. Any inappropriate postings will be removed.
No comments have been entered yet.
Add Your Comment
RELATED HEALTH BEHAVIOR NEWS
Respiratory Exercises Before Heart Surgery Can Prevent Pneumonia
Caregivers Neglect Their Own Health, Increasing Heart Disease Risk
Common Treatment for Mild Hypertension Challenged