Archive for December, 2011

1st Person: Acute Pain: Sudden Impact

First Person
Friday, December 30th, 2011

1st Person posts spotlight a patient’s or caregiver’s health care experience.

Dr. Jan Adams has had more than her share of painful experiences. A retired general practitioner and mother of two who practiced “womb-to-tomb” medicine, she conducted humanitarian work around the world, notably with medical clown Patch Adams (no relation).

Dr. Jan Adams

Dr. Jan Adams

I was lifting 30 pound boxes of greeting cards all day, which would not normally have been any issue for me. I noticed pain in my left groin. It was about a four on a scale of one to 10. During the night, the pain went right on up to 10. I had to have emergency surgery. The pain management was just fine. I used the tablets and started with a lot and then went down. Of course, it hurt if I moved wrong, but it was managed fine.

When I had cancer, I had pain that was probably a 20. They gave me everything they could, but nothing really took that pain away. But I happen to have a wonderful husband. He would massage my head for five hours at a time. He would sit by me, find meditation music for me, he fed me. I wouldn’t have gotten through it without him.

Adams had an emergency colonoscopy, for which she says she was not give proper anesthesia or pain management.

Because I hadn’t been eating much, my nutrition and everything else was in the toilet. [Apparently], the blood supply to my colon was compromised. Out of the blue, I was hit with pain in the abdomen that was worse than labor. I dropped to the floor in a cold sweat. When I got to the hospital, they immediately gave me a dose of a very strong opioid and that took the pain away. That was very bad: I’d had a colonoscopy before and it was a walk in the park.

How did I get through it all? How do you get through delivery? I had a lot of support. I had the sense that I was not finished yet. I’m cancer free now.

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Prepared Patient: Getting the Right Help for Acute Pain

HBNS Staff
Friday, December 30th, 2011

Prepared Patient Publication LogoWritten By: Maia Szalavitz, Contributing Writer
Prepared Patient
, is created by the Health Behavior News Service (HBNS), part of the Center for Advancing Health. This monthly series helps Americans participate more fully in their health and health care. For more issues of the Prepared Patient series, visit the archives here.

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Whether caused by injury, surgery or a toothache so bad it slams you awake in the middle of the night, acute pain is difficult. Receiving prompt and helpful treatment can make all the difference in the world. But lack of care or inadequate care means that the acute pain may develop into chronic agony.

Fortunately, acute pain is not always long lasting or overwhelming, such as when you have a short severe cramp or multiple bee stings that can be handled with time, over-the-counter medication and other home remedies [See: Pain Treatment Options].

Since individuals’ tolerance for pain varies widely, the question of when pain itself requires urgent medical attention is difficult to answer. Chest pain should prompt a visit to the emergency room, of course—but other types of pain are trickier to call.

Pain Treatment Options
Pain can be treated in a number of ways, depending upon its severity and cause. Treatment options might include one or more of the following:

  • Non-steroidal anti-inflammatory drugs (NSAIDs), a specific type of painkiller such as Motrin® or Aleve®
  • Acetaminophen (such as Tylenol®)
  • Narcotics (such as morphine or codeine)
  • Localized anesthetic (a shot of a pain killer medicine into the area of the pain)
  • Nerve blocks (the blocking of a group of nerves with local anesthetics)
  • Acupuncture
  • Electrical stimulation
  • Physical therapy
  • Surgery
  • Psychotherapy (talk therapy)
  • Relaxation techniques such as deep breathing
  • Biofeedback (treatment technique in which people are trained to improve their health by using signals from their own bodies)
  • Behavior modification

Some pain medicines are more effective in fighting pain when they are combined with other methods of treatment. Patients might need to try various methods to maintain maximum pain relief.

Adapted from The Cleveland Clinic Foundation.

Organizations That Can Help

American Pain Foundation
The American Pain Foundation web site is an online resource for people with pain, their families, friends, caregivers and the general public. This site is devoted to patient information and advocacy, and provides many links to additional resources.
http://www.painfoundation.org

“If it hurts like hell, come to the E.R.,” says Dr. Sergey Motov, assistant program director for emergency medicine at Maimonides Medical Center in Brooklyn. “The problem is that it’s so subjective, there’s no really good objective way to tell when [help is required]. If it’s the worst pain you’ve ever experienced, [come].”

Once you seek medical attention, you should be treated promptly and with compassion. “If you don’t treat acute pain properly, it can become chronic,” Motov says. “If someone comes in with acute pain and it’s sub-optimally treated, they go home and come back in three days and it’s sub-optimally treated again and later on they’re in chronic pain, that started with us because we did not address the acute pain properly in the first place.”

So how should extreme acute pain be treated? Jan Adams, a retired general practitioner herself, describes receiving excellent care after she had back surgery following an injury. She was immediately given strong opioid medication because of the intensity of the pain.

“What they did right was allow me to manage how much pain medication I needed for the first few days,” she says. “I needed more at first and what they did right was to allow me to manage the pain, understanding that there’s a big difference between abuse of pain medication and acute pain use of narcotics.”

Mike Gaynes, a media consultant, received similarly caring treatment with opioids when he reached the ER suffering with kidney stones. Although he does not normally have high blood pressure, the pain had made it skyrocket. “This was cork-popping,” he says, “They gave me I.V. morphine and it helped somewhat, then they gave me more and it helped a little more. It took the edge off but did not shut [the pain] down entirely.”

Toughing it out with severe acute pain is not recommended, because of the possibility that it could become a chronic problem. However, Dr. Kenneth Goldschneider, director of pain management at Cincinnati Children’s Hospital, says that complete elimination of pain is often an unrealistic goal because of the side effects of drugs. “I could give you anesthesia for a week and you would have no pain, but that would come at some cost,” he says. “You want the maximal amount of pain relief with the minimum amount of side effects like sedation.”

Adams’ bad experience of pain management came during an emergency colonoscopy, which she needed during treatment for a rare form of mouth cancer. Radiation therapy had left her weakened and malnourished, cutting off the blood supply to her colon. Because of the painful cancer treatment, she was already taking an extremely strong opioid called fentanyl and had developed a tolerance to it.

That same medication was used for anesthesia during the procedure. Because of Adams’ tolerance and the physician’s choice not to use an additional anesthetic along with it, she was left in agony. “He’s pumping air into my colon and I’m feeling like raw hamburger,” she recalls. “The entire floor heard me screaming but he wouldn’t give me anything more,” she says, explaining that she has typically been stoic when in pain

To avoid having a similar experience, Adams suggests a conversation about pain management before surgery. She says to ask explicitly, ‘What do you think is appropriate pain management?’ “One thing you want to hear is that ‘I’ll be sure that either I or the nursing staff will be trying to evaluate your pain [regularly] to make sure you’ll be as comfortable as possible,” she says.

Patients should also discuss any medications they are taking with their doctors before surgery. If someone has a tolerance to a particular medication, the anesthesiologist needs to be prepared to use higher doses or choose a different drug.

Treating Acute Pain
Most acute pain is not serious and can be handled with home care methods. Some advice from Dr. Kenneth Goldschneider, director of pain management at Cincinnati Children’s Hospital:For minor injuries, use a cold pack but for no longer than 20 minutes, he suggests.For sore throats, gargle with salt water— the only advice that has changed since grandma’s time is that aspirin is no longer used for children or adolescents. Use children’s ibuprofen or acetaminophen instead, he says.He adds that for infants under six months, sugar water has been found to have a short-term analgesic effect: In many hospitals it is now used for giving shots and placing IV’s and other procedures that produce brief, acute pain. It doesn’t work for older children or adults, however.

For toothache, Manhattan dentist Dennis Bohlin says that when you cannot immediately get to a dentist, use an NSAID drug like ibuprofen or naproxen that has anti-inflammatory properties, since inflammation is often a big part of the problem.

“I would always encourage people to change physicians or get another opinion if something doesn’t seem right when you talk about pain,” Adams says.

A decade ago, the Joint Commission on the Accreditation of Health Care Organizations (now known as the Joint Commission), which sets standards for medical centers, labeled pain as the “fifth vital sign.” Hospitals are now required to assess pain when other vital signs are taken after surgery or more frequently with especially painful conditions.

“There’s no excuse not to treat acute pain properly,” Motov says. If pain is not being adequately addressed, the hospital’s ombudsman or patient advocate should be contacted.

Dental pain is one of the worst forms of common, acute pain. Lys Fulda, then in her early 20s, had a toothache so severe that she went to her dentist’s office before it opened to make sure she’d be seen as quickly as possible.

The dentist injected her with Novocain, but it didn’t completely alleviate the pain as he began to drill. He tried another injection, this time directly into the tooth. “It felt like lightning went through my entire body. It created innate deep fear of dentists,” Fulda says.

While it’s not always possible to avoid such incidents because people’s nerves are sometimes anatomically unusual, experienced dentists can almost always prevent them.

“You need to take pain seriously,” says Dr. Dennis Bohlin, a Manhattan dentist and the educational coordinator for the New York State Dental Association’s committee on chemical dependency. “Part of it is reassuring [patients] that there is going to be end to it. Part of the anxiety about pain is the fear that it will last forever. It’s not going to, we can handle it. That reassurance is really important.”

Anxiety itself actually increases pain—so techniques that reduce anxiety are an important part of dealing with acute pain. With children, Bohlin says, it’s particularly important to calm the parents as well so that they don’t transfer their own anxiety to the child.

Incidents like what happened to Fulda or negative childhood experiences with dentists can create what Bohlin calls “subliminal anxiety,” which can drive avoidance of dentistry below conscious awareness. “It’s hard enough to come as it is,” he says, adding that this type of anxiety makes dragging yourself to the chair even more difficult. Fulda found that a reassuring, sympathetic dentist was able to help her overcome her fear.

If dental pain strikes in the middle of the night or on a weekend, Bohlin suggests taking a drug like ibuprofen, naproxen or aspirin—all of which fight inflammation, which is a big part of dental pain. Don’t take antibiotics, which can make the dentist’s job harder when he or she tries to diagnose the problem.

Acute pain can be harrowing, but fortunately in most cases it can be rapidly relieved.

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1st Person: Pain: a Constant Companion

First Person
Thursday, December 29th, 2011

1st Person posts spotlight a patient’s or caregiver’s health care experience.

Teresa Shaffer has suffered from chronic pain from degenerative joint disease since she underwent six months of bedrest during her third pregnancy.

I kept asking, ‘Why can’t I pick up my baby without my back feeling like it was exploding into a trillion pieces?’ I was told, ‘You’re a busy mom, you’ve probably just strained it’ and given over-the-counter medications.

After Shaffer received a diagnosis, her next step was to find the right medication and dosage.

Teresa Shaffer

Teresa Shaffer

It took me about four years to actually get a diagnosis. I started slowly with low doses and over the years I progressed to stronger opioids, which is where I am now. My life changed overnight. It was just awesome. I was back to picking kids up, playing in the yard, back to cooking, cleaning, back to being Mom.

She still has pain but she no longer rates it as a 10 on the pain scale, which is the worst pain imaginable.

It’s been almost 17 years. I’m still at an 8 out of 10, but, oh honey, I am ecstatic at 8. I exercise; I’m a firm believer in if you don’t use it, you lose it. I think you definitely should have a multidisciplinary program. I have done water therapy. I love it because I can do things in the pool with my legs and arms that I can’t do out of it.

I think pain encompasses the entire person, it’s not just in your leg or back, it encompasses your entire being, who you are what you do and don’t do, so physically, mentally, psychologically, you have to take care of all of those things.

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Prepared Patient: When Pain Doesn’t End

HBNS Staff
Thursday, December 29th, 2011

Prepared Patient Publication LogoWritten By: Maia Szalavitz, Contributing Writer
Prepared Patient
, is created by the Health Behavior News Service (HBNS), part of the Center for Advancing Health. This monthly series helps Americans participate more fully in their health and health care. For more issues of the Prepared Patient series, visit the archives here.

Living Beyond Pain

Prepared Patient - When Pain Doesn't End - photo from fotolia.comFor people with severe chronic pain like Kelly Young and Teresa Shaffer—both of whom have become patient advocates—coping with agony is a fact of life. Young suffers from rheumatoid arthritis while Shaffer’s pain is linked primarily to another degenerative bone disease.

Chronic pain is one of the most difficult—and common—medical conditions. Estimated to affect 76 million Americans—more than diabetes, cancer and heart disease combined—it accompanies illnesses and injuries ranging from cancer to various forms of arthritis, multiple sclerosis and physical trauma.

Pain is defined as chronic when it persists after an injury or illness has otherwise healed, or when it lasts three months or longer. The experience of pain can vary dramatically, depending in part on whether it is affecting bones, muscles, nerves, joints or skin. Untreated pain can itself become a disease when the brain wrongly signals agony when there is no new injury or discernable other cause. Fibromyalgia—a disease in which pain in joints, muscles and other soft tissues is the primary symptom—is believed to be linked to incorrect signaling in the brain’s pain regions.

Finding a Doctor

The first step to deal with chronic pain is to find a physician or medical team who can accurately diagnose your condition and work with you to lessen pain.

“It’s not easy,” says Shaffer. “You have to find someone [with whom you can] build a relationship of trust and open communication.”

Dr. Russell Portenoy, chairman of pain medicine and palliative care at Beth Israel Medical Center, agrees. “You need to identify someone with a high level of knowledge and competence, good communication skills and a network of professionals with whom they work, someone who has compassion,” he says.

Dr. Paul Christo, director of the multidisciplinary pain fellowship program at Johns Hopkins School of Medicine, also suggests looking for someone who has completed at least a year-long certification in pain management. This information can usually be obtained on the doctor’s website or by asking about his or her qualifications.

Acute or Chronic Pain
Acute pain is pain from an injury or illness, typically lasting only hours or days—and definitely not continuing once the original cause has cleared up. By contrast, chronic pain lasts months or years and continues even when the initial problem has been resolved. Chronic pain is itself considered a disease because it reflects pathology in the brain and nervous system —which transmits pain—that persists and affects all aspects of life functioning.

Comprehensive Treatment

Experts agree that comprehensive care—which can involve medications, exercise, psychological therapy, massage, physical therapy, injections and complementary treatments, depending on the patient and condition—is essential.

“The reason we now call chronic pain an illness is that we recognize that it is more than just a sensation in the body,” Portenoy says. “It affects your ability to function as a human being, your relationships, your ability to be productive, to think straight.”

Unfortunately, because they have so often been dismissed as having a problem that’s “all in your head,” many people with chronic pain resist considering talk therapy as a part of treatment.

“A lot of people have the misconception that what I’m telling them [when recommending therapy] is that their pain is a figment of their imagination,” Christo says. “That’s not what we mean. Pain has such an emotional component and psychotherapy is extremely useful in terms of helping patients reorganize and rethink how they interpret it and how it affects their lives.”

Says Shaffer, “Pain encompasses the entire person. It’s not just in your leg or back. It encompasses the entire being of who you are and what you can do and don’t do. So physically, mentally psychologically: you have to take care of all of those things.”

The Opioid Question

Although drugs like aspirin, ibuprofen and even some antidepressants can help relieve pain, the most effective medications for most severe pain remain the opioids, like Oxycontin and morphine. Both doctors and patients tend to fear these drugs because of concerns about addiction and overdose.

Prepared Patient - When Pain Doesn't End - photo from fotolia.comHowever, of patients without a prior history of addiction, less than 3 percent of patients who take opioids regularly for pain will become addicted to the drugs, according to a Cochrane review of studies. Opioids are currently under a cloud because of a sharp rise in overdose death and addiction, mostly resulting from misuse by people who aren’t pain patients. The majority of overdoses occur in people who abuse the drugs along with alcohol and depressants like benzodiazepines (for example, Xanax).

Virtually everyone who takes opioids on a daily basis will become physically dependent, however: They will suffer withdrawal if the drugs are not slowly tapered. But that is not the same as addiction, which is defined by craving, negative consequences, reduced ability to function and compulsive drug-related behavior.

Kelly Young avoided opioids for years, relying on high doses of ibuprofen (Advil) and similar drugs. But when the pain became excruciating, her doctor suggested she try an opioid. “I was afraid of side effects,” she says. “One night it was really bad so I took it.” At first, she felt severe dizziness. “But in 30 minutes, the pain started going away and I thought, ‘This is amazing, this is the first time in 4-5 years that I’ve been without pain,’” she says.

To reduce the dizziness, she cut the dose, starting with a liquid usually given to children so that she could find a level that allowed her to be most comfortable. Neither Young nor Shaffer, who also manages her pain with opioids, has ever developed addiction.

Two-Way Trust

Because doctors can lose their licenses or go to prison if they don’t detect addicts who fake pain, patients find themselves in a difficult position when they want to discuss opioid medications. Asking for a drug by name, for example, which might be fine with other conditions, is seen as a “red flag.”

“When you initially go to an appointment, you don’t want to go in there saying I need medication; that’s the worst thing you can do,” Shaffer says. “You want to ask for relief. Explain to the health care provider, ‘This is my life. I can’t get out of bed. I can’t do laundry. I can’t pick up my child. I need quality of life, that’s why I’m here.’”

Shaffer adds, “You have to be upfront and honest and build that relationship of trust with your doctor.”

Shaffer also notes that it is the patients’ responsibility to store opioids in a locked box safely: Many people who abuse and overdose on these medications get them from friends and relatives who do not secure them.

Acceptance and Hope

Shaffer and Young both recommend a mix of realism, mutual support and fighting spirit when it comes to facing pain. Young runs her Rheumatoid Arthritis Warrior website and Shaffer moderates online discussion groups for people in pain at the American Pain Foundation site. Experts agree that support from family, friends and people facing similar problems—so long as there’s some type of social support—is essential.

“You have to accept what your life is going to be, but you don’t have to give up,” says Shaffer, “OK, yes I have pain but that pain doesn’t own me or define who I am today.”

Pain Management Resources:

  • American Pain Society is a “multidisciplinary community that brings together a diverse group of scientists, clinicians and other professionals to increase the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering,” their website says.
  • American Academy of Pain Medicine This is a directory of physicians whose practice is primarily devoted to pain and offers its member continuing medical education in pain. The site’s Patient’s Center page provides general information and helps patients locate pain specialists in their area.

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